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Standardizing Person-Reported Outcomes - What Needs to Happen?

In this panel discussion webinar, you'll hear about the importance of PROs to ADCES and how to engage membership in developing the consensus statement; PROs in the pediatric space, including child-specific and parent-specific needs and how these can be understood; and the importance of the person with diabetes in consideration of PROs.

Member Price
$0.00
Non-Member Price
$0.00

  • Description
  • Faculty
  • Pricing

Description

It has long been recognized that a biopsychosocial approach to diabetes management is required for optimal health outcomes. In 1948, the World Health Organization (WHO) defined health beyond the absence of disease or infirmity to include ‘a state of complete physical, mental and social well-being.’

Furthermore, the WHO constitution states the enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being without distinction of race, religion, political belief, economic or social condition.

The challenge lies in the delivery of healthcare that achieve these goals. Many patient-reported outcome measures have been developed for use in diabetes, however their quality is variable. Furthermore, some measures are designed for use in clinical trials rather than in clinical practice and it is often not possible to determine what represents a meaningful difference of improvement or otherwise.

In 2020, the FDA qualified the first patient-report outcome (PRO) for use specifically in diabetes. This milestone represented an achievement of parity of esteem between standardized, rigorous assessment of a physical health outcome and a mental health outcome. Translating that standard into routine clinical care is necessary to enable healthcare professionals to effectively support their patients in optimal self-management of their diabetes.

As mental health safety is increasingly recognized in parity to physical health safety, it is intended that a consensus statement will provide the blueprint for how PROs are understood and measured by regulatory approvals bodies including FDA, research funders including NIH, industry and other key stakeholders.

In this panel discussion webinar, you'll hear about the importance of PROs to ADCES and how to engage membership in developing the consensus statement; PROs in the pediatric space, including child-specific and parent-specific needs and how these can be understood; and the importance of the person with diabetes in consideration of PROs.

There is no CE/CME credit for this webinar.

Access Period

You will have access to this recording for a period of six months after you enroll, or whenever the recording expires (whichever comes first).

Originally presented on: 3/2/2023
Expiration date: 3/2/2025

Facilitator:

Paulina Duker, MPH, RN, CDCES
Vice President, Practice and Learning
Association of Diabetes Care & Education Specialists

Panelists:

Lucille Hughes, DNP, MSN/Ed, CDCES, BC-ADM, FADCES
AVP of Diabetes Education and Program Design, Catholic Health
2023 ADCES President

Jill Weissberg-Benchell, PhD, CDCES
Pediatric Psychologist, The Pritzker Department of Psychiatry and Behavioral Health
Lurie Children's Hospital
Professor of Psychiatry and Behavioral Sciences
Northwestern University Feinberg School of Medicine

Emma Doble
Patient Editor for Education
The BMJ

Pricing

This webinar is free to ADCES members and non-members.

Access Period

You will have access to this recording for a period of six months after you enroll, or whenever the recording expires (whichever comes first).

Originally presented on: 3/2/2023
Expiration date: 3/2/2025

Association of Diabetes Care & Education Specialists

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